Hi everyone,I want to thank everyone who has been praying for our Hydi. Other than the birthmarks, she's doing really well. She did see a specialist at St.Louis Children's Hospital last Friday. They did another ultrasound on her liver, brain and spleen. She does have the hemangiomas (the birthmarks) all over her liver. They have started her on a medication that is used to treat heart problems. Some doctor discovered that this medicine shrunk the hemangiomas as well as treating the heart problems.
Hydi goes this Thursday to see an eye specialist at the Children's hospital because she has one on the colored part of her eye.
Here is a picture of Hydi and Papa (my husband) and the picture of Hydi by herself is one of Brandy's (Hydi's mom) favorite pictures.
Please pray that this medicine stops her birthmarks from growing and keeps her from getting anymore. If the medicine doesn't work, the next option may be steroids.
I also want to thank Aubrey Benson, who saw the post about Hydi's birthmarks on this blog and posted a comment. I then emailed Aubrey and she pointed me to a website that has a lot of information about this condition. We sent an email to a doctor in New York that is the leading expert in hemangiomas, and we received an email today that he would be contacting us either by phone or email within the next 2 days.
Again, thank you all for your prayers, and please keep praying.
Kim
3 comments:
What a beauty she is!!!
Aw, it looks like she's puckering up to kiss Papa! So adorable!
That is GREAT news about being contacted by the doctor in New York - AWESOME! Good luck!
Love that picture of her and her papa! That is so precious! We will be keeping both mom and baby and your family in our prayers.
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